Diagnosis
My Diagnosis Doesn't Make Sense
The confusion that comes with hearing the word "amyloidosis" for the first time, and where to go from there.
The Elevate Amyloidosis Podcast
Real stories from inside the amyloidosis journey.
Honest conversations with patients, caregivers, and physicians about diagnosis, treatment, and the mindset it takes to keep living fully. Hosted by Dan Lier, amyloidosis patient and survivor.
Start here: My Diagnosis Doesn't Make Sense
Educate. Empower. Elevate.
We help amyloidosis and rare-disease patients understand their options, speak up for themselves, and move through diagnosis, clinical trials and treatment with confidence.
For Dan's speaking and The Rare Disease Playbook, visit danlier.com/pharma.
Watch the podcast
Featured episodes
Amyloidosis is rare, often misdiagnosed, and hard to explain. These conversations are here so no one has to figure it out alone.
Introduction
Elevate Amyloidosis Podcast: Dan Lier Intro
Why this podcast exists, who it is for, and what you can expect from every conversation.
Patient story
Misdiagnosed & Suffering: My Fight for Answers
What it feels like when the symptoms are real but the answers keep missing, and how to keep pushing.
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Meet your host
Hi, I'm Dan Lier.
In 2017 I heard a word I had never heard before: amyloidosis. What followed was about two years of chemotherapy, a clinical drug trial, and more questions than anyone could answer. I learned quickly that this disease is rare, easy to miss, and lonely to live with.
I also learned that the thing that carried me through was not only medicine. It was mindset. The choice, every single day, to take action instead of becoming a victim of the diagnosis.
I started Elevate Amyloidosis to give patients, caregivers, and physicians a place to hear the real story. The symptoms that got dismissed. The long road to a diagnosis. The moments someone finally felt heard. If you are just starting this journey, I want you to know you are not alone, and there is still a lot of life to live.
Dan Lier, Host
Be a guest
Your story could help someone else.
Are you living with amyloidosis, caring for someone who is, or treating patients? I would love to hear from you. Your experience can help other patients feel less alone and help physicians better understand what this disease is really like.
- It is a relaxed conversation, not an interview.
- You get the questions ahead of time so you can reflect.
- Skip any topic you are not comfortable with.
- Recorded over video from home. No travel needed.
There are no right or wrong answers. Only your story.